Refsum Diet A diet low in phytanic acid is used for long-term management of Refsum Disease. This diet includes the exclusion of foods that are high in phytanic acid such as dairy products, beef, lamb and some fish. How does the Refsum’s Diet work? The diet works in two ways:
The foods that contain the most phytanic acid are products from: Cows (milk, butter, cheese, cream, products that contain these substances such as cakes or biscuits; ice-cream, beef,... Sheep (mutton, lamb, sheep’s cheese, sheep’s milk, sheep’s yoghurt) Oil rich fish (salmon, mackerel, herring, ...
DA:38PA:46MOZ Rank:87
Adult Refsum's Disease - Information for patients - Diet: Diet as a
It looks at what phytanic acid and phytol mean to adult Refsum's disease patients, how to choose a diet which protects against the symptoms of adult Refsum's disease (looking at different levels of risk in different foods, and which foods to eat), and gives specific information about cheese alternatives, eating out and convenience foods, the ...
DA:61PA:35MOZ Rank:85
Adult Refsum's Disease - Information for patients - Diet: Basic …
Jun 26, 2006 · Diet: Basic principles 1. Avoid all foods known to contain phytanic acid and free phytol Phytanic acid is found in foods obtained from animals... 2. It is very important to eat sufficiently well to prevent loss of weight When the weight falls body fat stores are... 3. Aim to eat a variety of foods, ...
DA:80PA:4MOZ Rank:12
Adult Refsum's Disease - Information for patients - Diet: Why diet …
Jun 26, 2006 · Diet: Why diet is important. Since 1963, researchers have known that adult Refsum's disease patients accumulate phytanic acid in their body tissues and serum. This fatty acid comes into the body in foods, and adult Refsum's disease patients lack an enzyme which is needed for metabolising and eliminating it. So if phytanic acid can be excluded from the diet - …
DA:13PA:16MOZ Rank:41
Adult Refsum's Disease - Information for patients - Diet: Eating out
Avoid cakes, biscuits, pastry - unless they are vegan and nut free. Eat only non-dairy ice cream. Beware sorbets - some have added cream. Indian meals are traditionally cooked with ghee (clarified butter) so are best avoided. Chinese meals are safer unless they contain beef or fish. They are usually prepared with vegetable oils.
DA:100PA:71MOZ Rank:64
Adult Refsum's Disease - Information for patients - Diet: Illness
Jun 26, 2006 · Diet: Illness - taking extra care. Illness and stress can cause a rise in blood phytanic acid levels and this can cause problems if neglected. See your doctor if you feel unwell and contact your dietitian urgently. Take extra care not to lose weight. If you lose your appetite or cannot eat properly, your GP can prescribe a nutritional supplement e.g. Fresubin sip feeds …
DA:37PA:40MOZ Rank:63
Diet Guide | Global DARE Foundation - Adult Refsum …
All other raw and cooked vegetables, legumes, salad, fruit are low in phytanic acid. Other Food Products Cereal products, like breakfast cereals, rice, quinoa and pasta do not contain significant amounts of phytanic acid. Foods to Avoid High Phytanic Acid Breads with dairy (e.g. brioche, croissants) Cereals with dairy
DA:56PA:35MOZ Rank:68
Adult Refsum's Disease - Information for patients - Diet: …
Althought adult Refsum's patients can break down some phytanic acid (10-30mg per day), they should aim to take in as little as possible. If their phytanic acid level is low, and either decreasing or stable, they may take one food from this group each day, though preferably not …
